Katrina’s 21 Story

I wanted to leave my story about a child that changed my life that happens to have Down syndrome. She is technically not related to me but I am not sharing her story with you for a tshirt. I just need her story to be heard. You see, 2 1/2 years ago I found out that children born in Eastern Europe who have Down syndrome are normally given up at birth and put into orphanages. Then between ages 4 to 6 they are transferred to adult mental institutions. I had always loved working with children with DS and the thought of them being treated so poorly broke my heart. One day while looking at a website that listed some of these children for adoption, I saw a little girl with blonde hair and hazel eyes that I just knew was my daughter.

For 2 years we have tried to adopt this little girl. She was 5 years old when we started the process and now she is 7. Her mother left her at the hospital the day she had her and has never come back for her. She has no relatives that are willing to adopt her or visit her.

We flew to Russia in July of 2012 to met her. At first she was angry with us for taking her away from her outside playtime. Once we went outside and blew up a big ball though she decided we were ok. During our visit I was able to teach her some sign language (ball, book, more, cracker, again, dog, horse, monkey) She picked it up very quickly and was very excited that we were trying to communicate with her. We had been told that she did not speak but on the second day when I asked her if she wanted to look at the book or play with the ball she signed and said book.

On our last visit with her we tried to sneak on the playground and just observe her with her group. She was way across the yard when we came out but we could hear her yelling and screaming for us. She ran right up to me and grabbed my hand. They tried to pull her away to go back to the group but she was not going to have it. She knew we were there for her and she liked that feeling. She soaked up all the individual attention we came her that visit and kissed and hugged us goodbye.

We thought we would be back in 3 months to have court and then bring her home. Little did we know that the Russian government would shut down all adoptions leaving this little girl to grow up in an institution.

We have been telling our story everywhere so that people will not forget our sweet Natasha. We have been to DC to ask congress for help. We are praying that the meeting between President Obama and President Putin will bring about change and a way for Natasha to come home instead of growing up in an institution.

If you would like to see what we are doing and like our FB page please do so. You may share with anyone willing to listen. I have also included a link to our video showing just how amazing Natasha is. No matter what the outcome is she will have always inspired me to do more for those who have something a little extra special going on and she will always be my daughter in my heart. Thanks for allowing me to share her story here.
https://www.facebook.com/pages/300-Broken-Promises/455788397829850

Stories of People With Down Syndrome Changing Lives

If They Had a Voice - Character of Marley

If They Had a Voice – Character of Marley

Send us your stories about how a person with Down syndrome has changed your life.  If we choose your story for our 21 Stories section then we will send you a free t-shirt.  Stories cannot be about relatives.  Thanks and we look forward to hearing from you! on twitter @jackjanamarley #iftheyhadavoice

From TN to BKK

From TN to BKK

During college, Jana and I met at Sevier Heights Baptist Church in Knoxville, TN.  From the very beginning Jana told me that she wanted a man that truly followed God, and to teach overseas.  When she told me that, I didn’t really consider what she said, because she was so BEAUTIFUL, and I would have done anything to get a date with her.  So after a year of dating, we got married, and finished our graduate degrees before heading to Bangkok, Thailand.  

 Our first five years teaching at ICS (www.icsbangkok.com) was a very smooth transition for us as a couple.  We worked together ministering to the students we both taught and coached.  All of that changed on March 19th when our daughter Marley was born. 

The day Marley was born, I went straight to the nursery and held her for well over two hours. I just held her and cried because I had never experienced such a love for anyone or anything in my life. I think the Thai nurses thought I was crazy because eventually they told me I needed to go be with my wife.  Three days later, before we left the hospital, the Pediatric Doctor told us she thought Marley might have Down syndrome.

My reaction: Are you freaking kidding me?  I immediately had a panic attack and they took me down to the ER.  Thoughts were racing through my mind: How could my perfect daughter have Down syndrome?  How could they not know for sure?  How could the general ultra sound- that said we had a one in eighteen thousand chance of having a child with DS- be wrong?  Why was God punishing me?  How could I live with a daughter that was going to be rejected by everyone… including myself?

I entered into a deep depression for the first year of Marley’s life. My wife was so concerned about me that I started taking anti-depressants and seeing a counselor.  I contemplated leaving my wife, or giving my daughter up for adoption, and suicide.  I would lie awake at night thinking about my future, and searching for a reason to live.  I believed everything negatively the world told me about Down syndrome, and viewed it as a curse on my family. The entire time I worried about how this would change my life!  That is when I realized that my relationship with God was not where it needed to be, despite the fact that I had gone to a Christian University, been ordained in a Christian Church, and moved overseas to teach at a Christian school.

Years ago, before my father died or Marley was born, my father told me,

 “ If you wanted to fix a problem, then do something about it”. 

 That is what I did.  First I stared reading through Psalms to find comfort in the Scriptures.  Next I started researching and calling every family I could find that had a child with Down syndrome.  I owe a great deal to these families because they were willing to talk to me despite the 12-hour time difference between Bangkok and EST.  I also started forcing myself to interact with my daughter.  She was desperate for me to start loving her, and continued loving me until I broke down and did the same.  And finally, I talked to God.  I talked to Him just like He was sitting in a chair beside me.  I was open and honest about the entire process, and then I began finding peace.

 Healing is a process, a journey, and that is what prompted me to make this video.  I would have never experienced this life changing transformation if Marley had not been born.  It is true, there are difficult times having a daughter with Down syndrome. But it also true, that she is very much like any other child. Marley smiles, laughs, plays, is able to meet many developmental milestones (albeit her own pace, with her own style), makes mistakes, and most importantly- completes our family.  She literally brightens my day every time I see her. 

 The “Medical Community” focuses on so many of the challenges associated with Down syndrome, that we developed this unnecessary fear -just because it is different.  The truth is I am a better person today because of my daughter, my daughter that has Down syndrome. I am thankful for a wife that was willing to push me to change, and support me when I struggled.  Mostly I thank God for Marley.  I remember praying while waiting those first two weeks to get her confirmed diagnosis, “God if you heal my daughter, then I will give up my own salvation”. God didn’t need my salvation- that was a gift from Him to me, just like Marley is a gift to us.

The reality is that I am still saddened that Marley has Down syndrome, but I am beginning to realize that God can bless us regardless of our circumstances. I will never be able to fully understand why Marley has Down syndrome, but I do know she has made a difference in my life, my wife’s life, and in the lives of so many in our community. 

Please share our website and video with your friends, because children with Down syndrome can change this world in ways we cannot.

From TN to BKK

We Have T-Shirts

We Have T-ShirtsIfTheyHadaVoice Shirts

We have ordered 100 t-shirts to help with our If They Had a Voice Campaign.  (AS, AM, AL) Will you help us raise awareness about Down syndrome and purchase your #IfTheyHadaVoice T-Shirt today?

Shirts are 10.00 US Dollars Each / 5.00 US Dollars For Shipping / Total 15

If you are interested in ordering a t-shirt then please email me about payment and processing your order.

[email protected]

Remember that 9 out of 10 never get the chance, but what if they had a voice?

Speaking Engagements

Most Summer and Christmas breaks we travel to America to connect with family and meet with Marley’s various therapists.  Usually, while traveling, we speak at different churches and functions.  If you are interested in us sharing our story with your community (church, conference, etc) then please email us – [email protected]  We start planing our schedule early every year so please contact us in advance.  Thanks again for your support and we look forward to sharing our story with you and your community in the future.

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