Sheila Harkin’s 21 Story

Sheila’s 21 Story

I grew up in a community of missionaries who were serving on a rural mission station in Africa in the 1970s.  These men and women had made huge sacrifices to leave the U.S.A. to offer services through medical care, education and teaching and showing God’s love.   They lived in conditions that were often difficult.  As missionary kids we spent our time building tree houses and forts, riding bikes, playing in the mud puddles during rainy season, catching chameleons and red velvet bugs, hunting with bb guns and slingshots, and so much more—Sanyati was our home and we loved it!

One of our MKs, Grady Fort, had a booming voice, an infectious laugh, a constant smile on his face and a heart full of love for all of his missionary family.  He loved music and always requested for us to sing “Do Lord” at mission and station meetings.  He also loved to come to our house, put on his favorite record and keep time with the rocking chair.  Grady was several years older than my sisters and I and we would love to run up to the back of the rocking chair and hold it back for just a fraction of a second so that it would get him off-beat.  Grady would yell “Sharon!  Sheila!  Susie!” and come chasing after us!

Grady was the fifth son of doctors Giles and Wana Ann Fort.  In Wana Ann’s book A Thousand Times Yes http://www.amazon.com/Thousand-Times-Yes-Doctors-Answered/dp/1596693835  she shares honestly the struggles and confusion she experienced when Grady was born and they realized that he had Down Syndrome.  As busy missionary doctors in the 1960s serving God in a location far from special needs help and support, this diagnosis was definitely not in their plans.  Here are her words as she describes the work that God did in her heart during Grady’s first week of life:

“God had mercy on me in that moment.  Grady’s condition was not going to change but mine was.  I will never forget the wonderful, comforting presence of the Holy Spirit in my bedroom that afternoon.  God assured me that He was going to make our experience with Grady in our family “all right.”  Those precious women and God’s Holy Spirit ministered to me. 

What I thought would be my suffering turned out to be a deeper walk with the Lord and an understanding of abundant life and joy.  Giles’s prayer that God would make us teachable was answered.  I was afraid that I wouldn’t know how to be a mother of a child with special needs.  I was afraid of failure.  I turned to the Father to help me, because I knew that Giles and I needed His direction on how to raise our new son.  Our boys, of course, didn’t have the initial reaction we did.  They were totally in love with their new baby brother.  Our mission family learned a lot, too, and Grady became everyone’s favorite.  And why wouldn’t he be?  He was a bundle of love from the get-go.” 

I haven’t seen Grady in many years, but my parents and sister saw him earlier this year and said he was the exact same Grady we grew up with—remembering everyone he came in contact with and loving each person.  Grady loved us all unconditionally and we loved him back.  He made an impact on all of our lives and we are better people for having grown up with Grady Fort.

Jen Norton’s 21 Story

Two years ago I was hopelessly stuck in a job I knew was going no where, a grad school program I hated and a lonely single life. After Marley was born Jana called to tell me she had Down Syndrome and my heart began to stir. I have loved Jana and Boomer as a best friend and big brother for more than 12 years now. They have a had a huge impact on my spiritual and personal life. I lived in Thailand and worked with them for two years. Walking thru all kinds of life with them, my heart was broken to hear their shock, devastation and confusion when We found out Marley had Down Syndrome. Because I lived in Thailand, I know the options for education there for a child with special needs are significantly difficult to find! God began to stir in my heart a desire to help special needs students. When Marley was a few months old I went to visit her in Thailand and the moment I saw her I was instantly in love! I knew I had to use my season of singleness to do everything I possibly could to learn how to give the best opportunities possible for Marley and other kids with disabilities. I came home from the trip to Thailand and changed my grad program to Special Education. The next semester I applied for a Special Ed job and began teaching at South-Doyle HS. I am now the SPED department chair. God began to use Marley as the inspiration for the tough days!! I am now able to not only gain experience in all areas of Special Ed, but God has used this opportunity to prepare my heart to minister and show Jesus to the ones the society sometimes doesn’t give a chance. I know that many of my students don’t have a voice and have no one to stand up for them. Marley’s life not only impacted the ministry side of my career change, but also my vision and hope for the future. After I gain experience working with students with all types of disabilities I hope that God will allow me start a program or school in other countries where there is no available opportunities for students with special needs. God used the precious life of our miracle Marley to change my heart and give me a new vision and passion for students #iftheyhadavoice. “Open your mouth, judge righteously, defend the rights of the poor and needy.” Proverbs 31:9

Katrina’s 21 Story

I wanted to leave my story about a child that changed my life that happens to have Down syndrome. She is technically not related to me but I am not sharing her story with you for a tshirt. I just need her story to be heard. You see, 2 1/2 years ago I found out that children born in Eastern Europe who have Down syndrome are normally given up at birth and put into orphanages. Then between ages 4 to 6 they are transferred to adult mental institutions. I had always loved working with children with DS and the thought of them being treated so poorly broke my heart. One day while looking at a website that listed some of these children for adoption, I saw a little girl with blonde hair and hazel eyes that I just knew was my daughter.

For 2 years we have tried to adopt this little girl. She was 5 years old when we started the process and now she is 7. Her mother left her at the hospital the day she had her and has never come back for her. She has no relatives that are willing to adopt her or visit her.

We flew to Russia in July of 2012 to met her. At first she was angry with us for taking her away from her outside playtime. Once we went outside and blew up a big ball though she decided we were ok. During our visit I was able to teach her some sign language (ball, book, more, cracker, again, dog, horse, monkey) She picked it up very quickly and was very excited that we were trying to communicate with her. We had been told that she did not speak but on the second day when I asked her if she wanted to look at the book or play with the ball she signed and said book.

On our last visit with her we tried to sneak on the playground and just observe her with her group. She was way across the yard when we came out but we could hear her yelling and screaming for us. She ran right up to me and grabbed my hand. They tried to pull her away to go back to the group but she was not going to have it. She knew we were there for her and she liked that feeling. She soaked up all the individual attention we came her that visit and kissed and hugged us goodbye.

We thought we would be back in 3 months to have court and then bring her home. Little did we know that the Russian government would shut down all adoptions leaving this little girl to grow up in an institution.

We have been telling our story everywhere so that people will not forget our sweet Natasha. We have been to DC to ask congress for help. We are praying that the meeting between President Obama and President Putin will bring about change and a way for Natasha to come home instead of growing up in an institution.

If you would like to see what we are doing and like our FB page please do so. You may share with anyone willing to listen. I have also included a link to our video showing just how amazing Natasha is. No matter what the outcome is she will have always inspired me to do more for those who have something a little extra special going on and she will always be my daughter in my heart. Thanks for allowing me to share her story here.
https://www.facebook.com/pages/300-Broken-Promises/455788397829850

Marcia Rigamonti’s 21 Story

Thank you for your honesty and willingness to let God change your thought processes. The most beautiful and completely unbiased compliment I ever received was from a young man, about 15 or 16 who had Down syndrome. I was all dressed up for a concert at our church and he came up to me and gently touched my shoulder and in a voice full of awe, quietly said, “Beautiful!” I almost started to cry because of his unsolicited open heart. Another young woman in our church who has Down syndrome gives the best hugs and greetings to everyone. I find myself hoping that she will “pick me, pick me” to give her next hug to. Her heart is full of love for everyone.

Stories of People With Down Syndrome Changing Lives

If They Had a Voice - Character of Marley

If They Had a Voice – Character of Marley

Send us your stories about how a person with Down syndrome has changed your life.  If we choose your story for our 21 Stories section then we will send you a free t-shirt.  Stories cannot be about relatives.  Thanks and we look forward to hearing from you! on twitter @jackjanamarley #iftheyhadavoice

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